International cooperation in digital transformation of person centric data led care

Call Reference: 
SC1-HCC-03-2018
Short description of project idea : 
Digital data-led health solutions demand novel approaches and policy in Europe. The digitalization of health and social care services and extensive changes in operating practices towards person-centric care require innovative data models and value assessments of personal data. The goal of the proposal is to create European level innovation network aiming at delivering personalized health and care solutions to benefit citizens. In the digital transition, there is need to move towards the effective integration of personalized care and medicine approaches into healthcare services and systems to the benefit of patients and citizens. Technological breakthroughs are allowing faster developments in personalized care and personalized medicine. Through instrumentation it is now possible to retrieve diverse kinds of data from citizens, including genomic, proteomic, metabolomic, imaging, historical, diagnostic, and physiological data. Moreover, communication, wearable solutions, and mobile health technologies provide new opportunities for measurements 24/7. However, the diverse health-related data is not being used efficiently in care processes, particularly from the 4P (predictive, preventive, personalized and participatory) medicine point of view. The healthcare system is not able to utilize currently available data for providing preventive care and wellbeing management of citizens. In data-led healthcare, special emphasis should be placed on the free flow of data: clarifying emerging issues of data ownership, access and liability, encouraging access to public data; a legal regime fit for an efficient and fair access to, usage and exchange of data. In addition, person-centered care needs an EU data value chain strategy that takes into account the utilization of personal data in research and in care.
Health
Main areas of expertise: 
Person-centered, data-led health and care & digital health -managing the strategic collaboration between academia, business and the public healthcare sector in the Oulu innovation alliance (OIA) concept/OuluHealth innovation ecosystem -promoting the innovation capacity and industrial collaboration for multi-disciplinary research and development -promoting research and innovation actions of personalized connected health -promoting international networking and collaboration in the thematic development area: National leadership in the strategic research program, Digital Health Revolution (www.digitalhealthrevolution.fi)
Main objectives of the project and how will they be achieved: 
Title: 
Establishment of a Europe–wide data ecosystem in data led care
Description: 
In order to explore the potential of health related data for health innovation and healthcare, we need to build European health research and innovation network. The network will stimulate innovation in the European healthcare domain and industry by exploring the application of advanced technologies, improve the health data practices and governance and promote regulatory science and ethical discussion on personal data management. This would ensure a comprehensive analysis of all interrelating decisive factors for the development and adoption of Big Data with respect to personalized medicine and care in Europe. Through Member States and multi-stakeholder collaboration, this would drive policy, regulatory, research and innovation activities to establish a Europe–wide data ecosystem in this arena.
Challenges that may determine the impact of the project: 
Title: 
Digital transition in person centric and data led care
Description: 
In the digital transition, there is need to move towards the effective integration of personalized care and medicine approaches into healthcare services and systems to the benefit of patients and citizens. Today, the diverse health-related data is not being used efficiently in care processes. The healthcare system is not able to utilize currently available data for providing preventive care and wellbeing management of citizens.
Title: 
Data management strategies in healthcare are lacking
Description: 
There are several challenges that remain to be addressed in the context of the secure end-to-end management and coordination of data. Furthermore, new General Data Protection Regulation (GDPR) gives more fine-grained control to the individual in use of personal data, and imposes more responsibilities on organizations. Data management strategies in healthcare are lacking in many EU member states, slowing down the development of new innovations and advancement of a European digital single market. The health sector is one prominent example - only 13% of member states have a national policy or strategy regulating the use of big data in the health sector, and only 9% have a national policy or strategy regulating the use of big data by private companies. A lack of data privacy and security laws is considered to be the top barrier to adopting big data and Mydata principles for healthcare.
Profile of partners sought and expected role: 
Title: 
Innovation ecosystems and PPPP networks
Description: 
In Europe the innovation through health data is promoted if the regional PPPP ecosystems/partnerships are investing together in the development of digital transition. The ecosystems may include academia, industry and public sector with health care providers and professionals.
Title: 
Research on ethics in data led health care
Description: 
Universities and research institutes which are studing ethics on the personal data management, big data and AI.
Title: 
Research/platforms on data processing and mangement
Description: 
The international cooperation would benefit on sharing the information of exciting data exchange platforms and models.
Previous, relevant EU project experience: 
Title: 
ReadiForHealth
Programme: 
Region of Knowledge
Title: 
Magic
Programme: 
H2020
Title: 
Midas
Programme: 
H2020
Title: 
InDemand
Programme: 
H2020
First Name: 
Maritta
Last Name: 
Perälä-Heape
Name of the organisation: 
Centre for Health and Technology
Short description of organisation: 
The Centre for Health and Technology (CHT) at the university of Oulu (Finland) is a RDI an center for health and well-being. CHT acts as an “innovation catalyst”, adding value to the existing research base, by accelerating the take-up and exploitation of technologies and research outcomes and by transferring research results to businesses and the healthcare sector. CHT is equipped with a substantial degree of flexibility to test new innovation models, allowing for true differentiation in engaging with stakeholders/innovation partnerships, such as Oulu Innovation Alliance (OIA). CHT manages RDI activities in the multi-stakeholder (PPPP) OuluHealth innovation ecosystem. To strengthen the research and development of data led care, University of Oulu has established the position for Professor of practice in data-enabled health care solutions & innovation ecosystems, which will enhance the implementation of the national growth strategy for research and innovation in healthcare. International research and innovation ecosystem networks on data-enabled healthcare has been established. The Centre for Health and Technology (CHT) is actively influences governmental and EU strategies and funding initiatives to better cope with emerging opportunities and synergies, and with complementarities with other policy. CHT acts with long-term integrated partnerships and achieves critical mass through its European dimension.

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